Wednesday, October 27, 2010
Neuropathies (central, autonomic and peripheral)- Heels and lower legs, Heart
GI- slowed GI Motility
Muscular- noted slight gait changes...primarily r/t right lower extremity, one episode of L hand "weirdness" this afternoon"
Respiratory- slightly more shallow
Psychiatric- delayed word recall and connection making, continued high level of stress at home, easily irritated
Sensory- light sensitivity, not hearing right
Pain/Comfort- lower legs and heels ache
Sleep/Rest- very difficult morning, feel extremely fatigued, fair night's sleep, worked 8- 4:30 at hospital, evening at home with family, rested alone in evening to decrease sensory input and buffer stress
Self-Propelled Disease Management:
- Good carbohydrate management
- Continued high level of family stressors... worn thin... irritable
- Appointment w/ primary doctor & hematologist next week... will explore neuro changes and ways to manage fitness.
- Called APF and requested Physician Education Packets Re: Porphyria to improve disease awareness in my area.