Saturday, October 9, 2010

Daily Post

 Neuropathies (central, autonomic and peripheral)- chronic heels,GI
 GI- Nausea, slowed GI motility, indigestion, bloating
 GU- no problem
 Muscular- "heavy feeling", weak
 Immune- ok
 Cardiac- no problems
 Respiratory- awoke several times last night with lungs feeling "heavy"
 Psychiatric- ok, calm, tired
 Sensory- eyes very light sensitive
 Pain/Comfort- right and left lower legs/ heels ache
 Sleep/Rest- poor night's sleep, asleep at 10:30pm up several times in the night...feeling "unsettled"...spent the day at home with husband and children...took a one hour nap
 Self-Propelled Disease Management:
-Need to restock groceries... less than adequate dietary management today
-Tried to take it easy as much as possible
-Tried to rest legs and elevate as much as possible
-Completed a 33minute Acute Porphyria Continuing Education Presentation for Health Care Providers... Porphyria Experts...excellent densely packed information...hopeful regarding enzyme replacement therapy availability within the next few years

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