Living with a rare chronic disease is a daily dance...till death we do part.
Sometimes I am at peace with Porphyria and "we" get along well...
I know what Porphyria "likes" and "dislikes"...
I try to maintain "peace" in our relationship by doing the things it likes and avoiding the things it doesn't.
Sometimes I get frustrated because no matter what I do Porphyria will flare-up without reason... that's just the way it is.
Navigating the nuances of Porphyria coupled with Autoimmune Thyroid Dysfunction and a Gluten Sensitivity can be absolutely crazy...
I have come to find that I always do best when I use my experiences as a knowledge base for something bigger than me...
Meaning...
if the challenges in my life can provide me with knowledge and insight that might help other people... well, then I cope better... I keep a more positive perspective on life.
I started this Blog on that very premise.
I hoped to pour my thoughts, research, personal happenings and feelings into one vessel (this Blog) then convert it to a book to be distributed to anyone who might find it helpful.
Honestly I am vulnerable... I get discouraged and even depressed at times...
I ask myself..."is this stuff really helpful for others?"...
Today I noticed the Blog Stats for the first time...
It was emotionally moving to realize that ~2,000 people visit this Blog from all over the world!!!
What a gift of encouragement!
Regenerated with encouragement, I will continue to do my best to complete the Blog to Book plan!!!
The Blog component should be finished September 2011.
I have reviewed a few Blog to Book programs and a few more self publishing options...
Email (nostalgicnursing@gmail.com)... insights welcome!
Best Wishes~
1 comment:
I'm so glad that you got to see some feedback; and I can't wait to read the book! Keep up the good work! ILY MFD
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