AIP Triggered By... The "Energizer Bunny" on "Crack Cocaine"

Part 1

It is not quite one week into "Summer Vacation" for my family...

-Twin 8 year old adoptive sons, with Reactive Attachment Disorder(RAD), Anxiety & Attention Deficit Hyper-Activity Disorder (ADHD)...

-Husband (School Teacher, also off for the summer), with ADHD...

The "Raw Energy" that exudes from these three individuals could power a large city!

The energy is delivered in a variety of formats...
-fun-loving playfulness
-outdoor enthusiasm
-sports participation
-multiple partially-completed home renovation projects
-behavioral rages & fits
-impulsivity
-stealing
-lying
-fabricating untruthful stories
-undermining
-manipulation
-deciet
-trickery
-blatent disrespect
-unkind remarks
-thoughtlessness
-embarrassment
-aggression
-violence
-constant LOUD voices
-self-focused, lack of empathy for others
-irrational thought processes
-multiple, simutaneous, stimulating, sensory imputs (TVs, Radios, Computers, Video Games, Conversation, etc.)
-never ending supply of "High Gear" energy in motion (good & bad)


Part 2

Pair this trio with a wife/mother ...a Thyroid that runs low... and an extra large genetic helping of Acute Intermittent Porphyria...
Not a pretty sight! Believe me...
I am dog tired most of the time and now that everyone is home for the summer I get very little rest time.
During the school year I work part-time....this allows me several days to rest while everyone is in school... I still have to manage the home...doctors appointments and food shopping... but I have a balance that I am able to manage most of the time.

Today I feel overwhelmed and hopeless... Porphyria has been "on my heels" for a few days now... I am anxious about my escalating symptoms... I had to work today... my cognative recall is slipping even with basic concepts....eye /light pain...headaches...leg pain...nausea... emotional instability... restlessness... irritability...

I can usually "calm the beast" by removing sensory stimulants...resting... increased carbohydrate intake... and more rest... BUT... did you read Part 1???

Part 3

I don't know how to best cope... I am run down, tired out, and over stressed... I try to see the light at the end of the tunnel... but today I cannot.
Others I reach out to are unfamiliar with the dynamics that complete our home...
They politely listen as I vent... this helps some.

I pray...I eat right... I exercise daily (when I am well enough)... I pray some more... I try to live a lifestyle of healthy choices...of love... of kindness and respect... I have sought professional intervention for my family... counselors... psychologists... medication... physicians... specialists... religion/faith/spirituality... I try very very hard to be positive in effectively managing my Health Situation but today...
today I am struggling...
today I am discouraged...
today I feel hopeless...
today my body hurts, I am physically, emotionally and cognitively uncomfortable
today I can't think straight or recall common words or processes
today I wish I were stronger in every way
today I am angry with my family for "triggering my Porphyria" with their issues
today I am angry with myself for being weak
Today I wish Porphyria would go away!
Today I really HATE Porphyria... I am tired of this same old cycle!!!