The goal of creating this blog is to provide insight for those who have not experienced AIP (medical practitioners,co-workers, friends and family); and to empower those who have. I am a Nurse Care Manager/Health Educator by profession. I have AIP. It is my hope that this AIP blog can act as an information portal that inspires connection making... ending in large scale wellness outcome improvements.
Friday, March 18, 2011
Enzyme Follow-Up
What about enzyme replacement to treat AIP?
"Porphozym by Zymenex"...
I sent an email to one of the top AIP Specialists in our country asking him this question.
He responded within 24 hours!!!
What a thoughtful person.
His reply basically stated that "Porphozym" was found to be ineffective in clinical trials and was therefore never offered as treatment to the general population.
IV Hematin remains the treatment of choice for AIP.
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