The goal of creating this blog is to provide insight for those who have not experienced AIP (medical practitioners,co-workers, friends and family); and to empower those who have. I am a Nurse Care Manager/Health Educator by profession. I have AIP. It is my hope that this AIP blog can act as an information portal that inspires connection making... ending in large scale wellness outcome improvements.
Friday, March 18, 2011
Colonoscopy
At 9am this morning I was wheeled via stretcher to the procedure room for a colonoscopy.
At 41 years young I had my first colonoscopy 3 years ago because my father struggled with Cancer that began in the colon.
I am glad I went 3 years ago... they found and removed an abnormal area.
I didn't need to return for 3 years!
Now...after today... I am cleared for 5 more years!!!
The Colonoscopy is a great Cancer prevention/ early detection tool that I promote Whole-Heartedly!!
But...
It is a little harder for people with AIP.
My first experience was awful! I was absolutely miserable and stayed unwell over a week!
But...
I didn't know that I had Acute Porphyria back then!
My AIP Colonoscopy Protocol:
1. Schedule the procedure first thing Friday morning (if possible)
2. Take Thursday and Friday off from work (and make sure the weekend is clear of obligations)
3. If I still had a menstrual cycle I would try to schedule the procedure the week or two after menstruation ends
4. I use a "Dulcolax" and "Mirilax" colon "cleanse" process outlined by my Gasteroenterologist
5. The day before the procedure I am only allowed "clear" liquids...so I drank GREAT quantities of blue "Gatorade" to keep my carbohydrates from dipping too much... this also helps in avoiding dehydration
6. I thoroughly went over my AIP diagnosis with the GI doctor and the Anesthesiologist... giving them both printed literature I ordered from "The American Porphyria Foundation"
7. I determined ahead of time which medications I would be receiving and made sure that they were AIP "SAFE"
8. The nurse started an IV infusion of dextrose as soon as I arrived
9. I packed a small meal for after the procedure
10. I went home and rested for the remainder of the day
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