Thursday, November 4, 2010

Narrative Note

6 month follow-up visit with Hematologist
I have conflicting feelings about my Hematologist...
He is very well educated (MD/PhD)and has lived in several places throughout the world.
We have been managing my AIP together for about 3 years (even before my self navigated diagnosis) yet he has not yet invested in understanding AIP beyond giving dextrose and heme infusions... he knows how to treat an active phase of AIP but was unaware, until I counselled him today, that the liver is impacted by AIP.
Sometimes I get anxious that I understand more about my disease than my physician..

No comments: