The goal of creating this blog is to provide insight for those who have not experienced AIP (medical practitioners,co-workers, friends and family); and to empower those who have. I am a Nurse Care Manager/Health Educator by profession. I have AIP. It is my hope that this AIP blog can act as an information portal that inspires connection making... ending in large scale wellness outcome improvements.
Friday, January 7, 2011
Taking Action Steps
On December 20Th 2010 I changed gears and decided that I needed to help educate physicians about Acute Porphyria...
This is the letter I wrote and distributed to all 40 Emergency Room Doctors, Physician Assistants and Nurse Practitioners at my Regional Hospital...
Dear Fellow Health Care Provider,
Due to personal experience with Acute Porphyria, I feel a strong motivation to improve Porphyria awareness; therefore improving the quality of life for those touched by it. Please read the attached information and complete the online CEU (http://medscapecme.com/case/acuteporphyrias)(allow about 30 minutes).
I have also put together a more comprehensive information packet and will leave it with the Medical Secretary if you are interested in reading it.
Thank you in advance for your professional investment.
Best Wishes~
T. Suzanne Jaynes RN,BSN
Emergency Department Care Coordinator
Each Health Care Provider (HCP) received a cover letter and pre-printed education materials from the American Porphyria Foundation.
Unfortunately, I have not received any feedback to date.
My next intention is to create similar packets for other HCPs in the community.
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